September
October
2010
"The First Step to Treating Pain"
"...Polio survivors have been found to have multiple potential sources of pain as they age ... pain can interfere with function, add to further decline, lead to depression, poor sleep and fatigue..."
by Amy Clunn, M.D., Southeastern Rehabilitation Medicine of Ocala, Florida
President's Letter for July and August, 2010
"20-Year Anniversary Celebration of the NCFPPSG"
(Summary of the May, 2010, Program)submitted by Sharon Daszczynski
Eighty-some people attended our celebration, and some old and valued friends and physicians came to join us...
"On The Road to the ADA"
by Sharon Gardner
"..It was 1983 and I was a Vista volunteer assigned to help Justin (Dart) implement his vision for people with disabilities. I was taking dictation in longhand from Justin's deep bass monotone: 'It is the law of the United States of America that...' Suddenly Justin interrupted himself, '..Do you realize what you just wrote? ...You just wrote in your own hand the beginning of a document that will one day change the world for persons with disabilities...' "
"Final Report: Persisting Noninfectious Genome Fragments of Poliovirus in PPS Patients"
Antonio Toniolo, MD; Antreina Baj, MD; Guiseppe Maccari, MS
This is the update on PHI's research fund...
"Gait and Post-Polio"
by Marianne Weiss, MS, PT
"..Among the physical problems leading to alls are los of balance, overall fatigue, weak muscles and abnormalities in gait ... Falls are a chief cause of death and increased disability in (the United States)..."
"Wheelchair Antics"
by Eileen Vaught
"..Let's face it: dealing with the after effects of polio is not easy ... (But) haven't we also had times of very funny experiences..?"
"Daily Meditation Can Increase Pain Tolerance, Reduce Stress"
by Mehmet Oz, MD, and Michael Roizen
"..If you are among the tens of millions ... living with chronic pain ... we've got news about a drug-free "Om remedy" worth trying..."
"NOT What the Doctor Ordered"
by Sid Kirchheimer
"..Medical records are the mother lode for identity thieves ... Social Security numbers, addresses, sometimes payment accounts..."
"20 Ways to Identify the Local Hospital That's Best for You"
from the AARP Magazine
Soooooo.... how DO you pick the local hospital that is best for you..?
"Heartburn Drugs Pose Risks: 12 Natural Symptom Relievers"
by Deborah Kotz (US News.com
"..About 60 to 70 percent of people taking these drugs have mild heartburn and shouldn't be on them..."
"Be Healthier, Live Smoke Free"
by Amy Kingery, SRRMC
"..More deaths are acaused each year by tobacco use than by all deaths from HIV, illegal drug use, alcohol use, motor vehicle injuries, suicides and murders combined.." Isn't THAT enough reason to get off the butts?
"Why Does Resting Help?"
by Richard Bruno, PhD
If post-polio muscle weakness is due to our motor neurons dying ... why do I improve with rest after having a period of severe weakness when I overdo?"
"TES: Dangerous or Merely Infeffective?"
by Richard Bruno, PhD
"..The idea of using Threshold Electrical Stimulation (TES) to treat post-polio muscle weakness had been around for more than a decade. During that time there has been as much concern about the safety of polio lsurvivors using TES..."
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All articles appearing in the Polio Post News are the exclusive property of the Polio Post News and/or the originating author of the article and reprinting any article from the Polio Post News, whole or in part, is strictly prohibited without the written aconsent of support group president, Carolyn Raville OR permission of the originating author. Each online issue of the Polio Post News features a message from support group founder and president, Carolyn Raville, a summary of the programs attended since the last issue, the subject, time and place of our next program and information on upcoming events, as well as selected articles from our current newsletter. Articles by physicians and therapists should be kept true, accurate, and edited ONLY by, or with the permission of, the author. We do, in fact, frequently pass articles by the author just to give them an opportunity to update or change part of their work.
You can contact Carolyn Raville
with comments and/or requests by writing to:
the North Central Florida Post-Polio Support Group
7180 SW 182nd Court, Dunnellon, FL 34432
OR
email Carolyn at Carolyn@PostPolioSupport.com
Copyright © 2010 (North Central Florida Post Polio Support Group) All Rights Reserved
Reproduction whole or in part without permission is prohibited
President's Letter
I recently read that a poet (unknown) wrote:
"As a rule, man's a fool.
When it's hot, he wants it cool.
And when it's cool, he wants it hot.
Always wanting what is not."
How true. I think we are all guilty.
Vacations are now over and soon we will welcome our friends' return from the north. It is my hope that no matter where you vacationed, you had a restful summer in spite of the extra extreme and unmentionable heat. Summer will be over on September 23rd as we move into the months of fall; perhaps it will be a bit cooler. The leaves will begin to be shaded with beautiful shades of brown, yellow and carrot-tone colors. We will see pumpkins for sale and hear plans of fall festivals. This is the beginning of the holiday season! Our regular monthly programs will continue on Sunday, September 12th (more on that in a moment).
Although vacations are over, hurricane season is NOT over! I hope you and your family are prepared. Looking back over Florida's history, some of the worst hurricanes in Florida since 1926 hit during the month of September and I remember one in late October. You can receive hurricane warnings, news and updates on your computer from the National Hurricane Center (nhc.noaa.gov). Stay informed and DON'T let a hurricane take you by surprise! The season ends on November 30th.
I have an "emergency story" to share with you from the Raville home: It was early morning, Wednesday, July 28, after breakfast. Jerry was getting dressed when all of a sudden he could not get his breath… heart beating fast… can't catch his breath… feeling faint. I called his doctor, then 911. In just a few moments the Rainbow Springs Fire Rescue team and ambulance was at our home, along with a few other paramedics. Within minutes Jerry was stabilized, packed up and off to the hospital (You can tell we've done this before). The firemen from Rainbow Springs asked me if they could help me with anything so I could be on my way to the hospital. We were standing by our van and someone noticed one of my tires was flat. Oh, great. But I remembered that my daughter Shirley had given me an air compressor and put it in the back of the van. The firemen found it and put air in the tire and suggested I call Patrick's Auto Service and tell them I was on my way in to the hospital. They told me they would keep a bay open for me. I arrived before the tire could go flat again and they repaired it for me. Then they said, "Go take care of Jerry. We can total this up later." Teamwork saved the day. My daughter thought the compressor might come in handy one day, the kindness and quick action of the fire rescue team, the paramedics, Patrick's Auto Service, the MRMC emergency team, and Jerry's primary care physician meshed their abilities together to carry Jerry off to the hospital and saw to it I followed not far behind. They all made me very proud to be living in Marion County, we have a lot of caring people around us…
As it turns out, Jerry has pneumonia and other complications, but is doing well now with all the good care he is receiving. He will miss the September program, but hopes to see everyone in October after his rehab.
There will be an Independence Expo with life-enhancing vendors and exhibits, workshops on health care, travel, housing, a fun raffle and door prizes, and more!
Where: Buena Vista Palace Hotel Convention Center, 1900 Buena Vista Drive, Orlando, Florida. When: Friday, October 1, 10:00AM to 4:00PM, and Saturday, October 2, 11:00AM to 5:00PM. Admission is free with pre-registration. You can pre-register at www.independenceexpo.org OR call 1-800-404-2898. The parking is also free. Sponsored by: Permobil. Sounds like fun. If you plan to spend the night, the phone number for the Buena Vista Palace Hotel is 1-866-397-6510.
Our hearts are filled with sorrow for the families of two of our faithful members. Sarah Tucker passed away on July 5, 2010, and Joe Doblmeier passed away on August 22nd. We are so sorry for the loss of your wife, Jerry, and Joan for Joe. They will be missed by many, and certainly missed by us all; our memories and your memories of Sarah and of Joe will always be the legacy of love.
You will find many interesting and helpful articles in this issue of the Polio Post News. We have two excellent speakers for September and October that you will not want to miss: Nick Mancini, pharmacist, and Fred Shirley, Physical Therapist.
Our speaker for Sunday, September 12th, at 2:00PM, is Nicholas J. Mancini, RPh, or "Nick" as everyone knows him. His program will be "What About Your Medication?" Pharmacists are becoming more involved in counseling patients and planning drug programs. Nick moved from New York City to Dunnellon, Florida, 27 years ago. He attended Fordham University, New York (B.S. Pharmacy) and the St. John's University, also in New York for his M.S. degree in Hospital Pharmacy Administration. Nick has worked in the pharmaceutical industry (Wyeth Labs); and has spent most of his career in several hospitals in New York and Florida, and in retail pharmacy. He has been a consultant pharmacist to many dialysis centers, nursing homes and correctional facilities. Now is your opportunity to ask questions. Make a list and bring it with you on Sunday, the 12th of September.
We will have the pleasure of having our friend and therapist, Fred Shirley, MS, PT, CEAS, with us on October 10 at 2:00PM. Fred has been affiliated with our group for a number of years. Fred was the therapist for the North Central Florida Post-Polio Evaluation Team that Dr. Burton Marsh established in 2000. Fred is now the Outpatient Rehab Services Supervisor for Citrus Memorial Health System at Beverly Hills Physical Rehab Center in Beverly Hills, Florida. The title for Fred's program will be "Falling Gracefully: The Balancing Act of Fall Prevention".
We have two outstanding programs coming up. Bring your family and friends with you. I look forward to seeing you on Sunday, September 12th and Sunday, October 10th.
your President,
